Dealing with a chronic illness and being away from school and friends has presented several challenges over the past year. There have been so many moments when my emotional state falls apart and I am left in a puddle of depression. People with chronic illnesses all experience this at some point but for me it began when I realized that my illness was really distancing me from those I needed most, my family and friends.
Last spring, when this “journey” began, my friends and I acted like nothing was changing. We would get together and they'd ask how I was and I'd lie and say fine or act enthused about my new diet and we would continue on like before. I thought that acting this way would make things easier for everyone, especially myself. Of course, as months passed and my body started becoming weaker from treatments I was no longer able to participate in the fast paced collegian world with my friends. I would still say I was fine – because I knew on the outside I looked like myself but my body was falling apart on the inside. I started becoming the “no show” at parties more and more, or I would have to leave early from activities to take a nap or avoid doing things all together because they were too strenuous. As these situations continued to go on many people, friends, became frustrated with me. I heard the “you’ve really changed” line, I was told that I was being foolish for isolating myself, and worst of all I was called a horrible friend. As everyone reacted to my “new self” in his or her own ways I became emotionally distraught. For months I dealt with anger and bitterness towards everyone around me. How could they not understand what I was going through? Where was my sympathy, my support? I felt like everyone was fleeing my side because I was no longer able to do fun things. I felt completely isolated from who I once was.
In all honesty, I am still dealing with a lot of bitterness. It is so hard to think of a year ago, or two years ago when I was able to stay up all night and drink wine and laugh with everyone. I miss friends. I miss college. I miss being able to walk up Morton Hill without feeling like I’m going to die. But I can’t sit around and feel sorry for myself any longer. I don’t have energy for that! So I want everyone to know that I know that I’ve changed, and trust me it’s been hard. But here I am. This is the new me and maybe it’s not the exciting 21-year-old life that I once had in mind. But why should I regret something that I can’t change? I’m doing my best to expand my mind and to let go of things. To do that though I need some help: help me embrace life and the new things I’m learning about my body. Support my excitement about books and movies and taking naps with friends and eating kale chips. And I will enjoy watching everyone as they have fun rock-climbing and dancing and going out – and hopefully I can participate again sometime in the future because I cannot wait to be healthy and to live a full life. And I will. But I can’t let people get to me, I can’t sit here feeling like I’m missing out everyday or like I’m isolated from the rest of the world. I understand that these thoughts and actions (or reactions) are my own and I always have the ability to grow from them and the power to change them. So cheers to embracing each other! For whoever it is we are and for whomever we may become in the future!
I just wrote you a long(ish?) letter about this. how magic! I keep forgetting to send it. I will throw it in the mail today.
ReplyDeleteI have really loved reading your blog, megan. I admire your honesty- it is brave! I also admire how much you seek to understand and help others suffering with the same thing. it's inspired me to learn more about my body and to treat it better :) prayers are with you, friend.
ReplyDeleteMeg. You are my hero. You are stronger than anyone I've ever known, and I love you with all of my heart. I am sorry I haven't been a good friend, and I am so excited to see that you're growing and learning and accepting. I know it has to be a challenge every day, but I believe in you with all that I am.
ReplyDeleteLove